An advocate who offered a window on the experience of living with brain cancer dies at 43

In 2018, I wrote a profile of a patient advocate named Adam Hayden. A few years earlier, at the age of 34, soon after he and his wife had had their third child, Adam was diagnosed with terminal brain cancer. I saw the story as a way to write about how people with fatal diagnoses navigate decisions on how to spend their remaining time. 

Adam died over the weekend, at 43. He and his family — his wife Whitney, and their three sons, Isaac, Noah, and Gideon, now 14, 12, and 10 — lived with his illness for nine years.

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