Category: advocacy
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Opinion: The U.S. government’s failure to acknowledge World AIDS Day takes us back to a troubling time
Opinion: The U.S. government’s failure to acknowledge World AIDS Day takes us back to a troubling time “Silence = Death.” That was the mantra of determined AIDS activists who quickly concluded the U.S. government was not doing enough to combat the then-emergent AIDS epidemic, which first hit the headlines in 1981. Read the rest… Gavin…
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Opinion: A global health expert on Covid’s lessons — and warnings — for the future
Opinion: A global health expert on Covid’s lessons — and warnings — for the future Below is a lightly edited, AI-generated transcript of the “First Opinion Podcast” interview with vaccine and global health expert Seth Berkley. Be sure to sign up for the weekly “First Opinion Podcast” on Apple Podcasts, Spotify, or wherever you get your podcasts.…
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Opinion: Public health leader: Susan Monarez must be reinstated at the CDC
Opinion: Public health leader: Susan Monarez must be reinstated at the CDC The Centers for Disease Control and Prevention has long been the world’s most prestigious public health agency. The CDC led the global efforts to eliminate smallpox, combat HIV/AIDS, shift public perception/use of tobacco products and dramatically reduce dental care issues by promoting the…
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STAT+: Drugmakers form new group to lobby on impact of Medicare drug price negotiations
STAT+: Drugmakers form new group to lobby on impact of Medicare drug price negotiations WASHINGTON — A handful of drug companies have formed a group to present lawmakers with research on what the industry sees as the negative impacts of Medicare drug price negotiations, according to lobbying records. The group is called the IRA Watchdog…
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Kennedy, disability advocates paint very different realities as ADA turns 35
Kennedy, disability advocates paint very different realities as ADA turns 35 Stirring speeches filled the tall, fluorescent room on Monday morning as members of the disability community and federal officials celebrated the 35th anniversary of the passage of the Americans with Disabilities Act. They spoke at length about how the landmark law birthed critical protections…
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Opinion: We are mothers of Duchenne patients. Recent setbacks with Sarepta must not stop progress
Opinion: We are mothers of Duchenne patients. Recent setbacks with Sarepta must not stop progress They say death is one of life’s few certainties. For a boy or young man living with Duchenne muscular dystrophy, that certainty has a cruel twist: the anticipation of dying young. As mothers of children with this disease, we have…
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Opinion: Following second patient death, Duchenne muscular dystrophy families deserve answers about Elevidys
Opinion: Following second patient death, Duchenne muscular dystrophy families deserve answers about Elevidys On Sunday at 1 a.m. Eastern time, an announcement went out from the first-generation gene therapy company for Duchenne muscular dystrophy: A second patient who had been treated with Elevidys has died. This second family said yes to hope, yes to science,…