{"id":5422,"date":"2025-07-18T23:05:52","date_gmt":"2025-07-18T23:05:52","guid":{"rendered":"https:\/\/mailitics.com\/index.php\/2025\/07\/18\/sarepta-elevidys-deaths-duchenne-muscular-dystrophy-dmd-mothers-research-progress\/"},"modified":"2025-07-18T23:05:52","modified_gmt":"2025-07-18T23:05:52","slug":"sarepta-elevidys-deaths-duchenne-muscular-dystrophy-dmd-mothers-research-progress","status":"publish","type":"post","link":"https:\/\/mailitics.com\/index.php\/2025\/07\/18\/sarepta-elevidys-deaths-duchenne-muscular-dystrophy-dmd-mothers-research-progress\/","title":{"rendered":"Opinion: We are mothers of Duchenne patients. Recent setbacks with Sarepta must not stop progress"},"content":{"rendered":"<p>    Opinion: We are mothers of Duchenne patients. Recent setbacks with Sarepta must not stop progress<br \/>\n \t<BR><br \/>\n<BR><\/BR><br \/>\n    <!-- no image --><br \/>\n \t<BR><br \/>\n<BR><\/BR><\/p>\n<div>\n<p>They say death is one of life\u2019s few certainties. For a boy or young man living with Duchenne muscular dystrophy, that certainty has a cruel twist: the anticipation of dying young.<\/p>\n<p>As mothers of children with this disease, we have wept helplessly in recent months as friends \u2014 fellow members of a club we never asked to join \u2014 said goodbye to their sons, the babies they once held in their arms, whose dreams they held in their hearts until Duchenne robbed them of working muscles or a healthy future.<\/p>\n<p><a href=\"https:\/\/www.statnews.com\/2025\/07\/18\/sarepta-elevidys-deaths-duchenne-muscular-dystrophy-dmd-mothers-research-progress\/?utm_campaign=rss\">Read the rest\u2026<\/a><\/p>\n<\/div>\n<p> \t<BR><br \/>\n <BR><\/BR><br \/>\n    Jennifer Handt and Kelly Maynard<br \/>\n \t<BR><br \/>\n<BR><\/BR><br \/>\n<a href=\"https:\/\/www.statnews.com\/2025\/07\/18\/sarepta-elevidys-deaths-duchenne-muscular-dystrophy-dmd-mothers-research-progress\/?utm_campaign=rss\">Go to statnews<\/a><br \/>\n \t<BR><br \/>\n <BR><\/BR><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Opinion: We are mothers of Duchenne patients. Recent setbacks with Sarepta must not stop progress They say death is one of life\u2019s few certainties. For a boy or young man living with Duchenne muscular dystrophy, that certainty has a cruel twist: the anticipation of dying young. As mothers of children with this disease, we have [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[2997,2194,2154,2143,2659,2155,2678],"tags":[2150],"class_list":["post-5422","post","type-post","status-publish","format-standard","hentry","category-advocacy","category-biotech","category-biotechnology","category-first-opinion","category-gene-therapy","category-pharmaceuticals","category-rare-diseases","tag-statnews"],"_links":{"self":[{"href":"https:\/\/mailitics.com\/index.php\/wp-json\/wp\/v2\/posts\/5422"}],"collection":[{"href":"https:\/\/mailitics.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/mailitics.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/mailitics.com\/index.php\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/mailitics.com\/index.php\/wp-json\/wp\/v2\/comments?post=5422"}],"version-history":[{"count":0,"href":"https:\/\/mailitics.com\/index.php\/wp-json\/wp\/v2\/posts\/5422\/revisions"}],"wp:attachment":[{"href":"https:\/\/mailitics.com\/index.php\/wp-json\/wp\/v2\/media?parent=5422"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/mailitics.com\/index.php\/wp-json\/wp\/v2\/categories?post=5422"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/mailitics.com\/index.php\/wp-json\/wp\/v2\/tags?post=5422"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}