{"id":9425,"date":"2025-12-30T23:02:21","date_gmt":"2025-12-30T23:02:21","guid":{"rendered":"https:\/\/mailitics.com\/index.php\/2025\/12\/30\/erythropoietic-protoporphyria-treatment-bitopertin\/"},"modified":"2025-12-30T23:02:21","modified_gmt":"2025-12-30T23:02:21","slug":"erythropoietic-protoporphyria-treatment-bitopertin","status":"publish","type":"post","link":"https:\/\/mailitics.com\/index.php\/2025\/12\/30\/erythropoietic-protoporphyria-treatment-bitopertin\/","title":{"rendered":"STAT+: A new drug allowed them to go in the sun for the first time. They\u2019re terrified they may have to give it up"},"content":{"rendered":"<p>    STAT+: A new drug allowed them to go in the sun for the first time. They\u2019re terrified they may have to give it up<br \/>\n \t<BR><br \/>\n<BR><\/BR><br \/>\n    <!-- no image --><br \/>\n \t<BR><br \/>\n<BR><\/BR><\/p>\n<div>\n<p>It was particularly cold and windy for a November day, but that didn\u2019t matter to Ginger Gonsalves and Becky Kelliher. The sun was out, and no one counted the seconds in the open air. No one suggested retreating inside.<\/p>\n<p>\u201cI don\u2019t know why my eyes water like crazy,\u201d Gonsalves said as they ventured into her Weymouth, Mass., backyard.<\/p>\n<p>\u201cIt\u2019s because you have light eyes,\u201d Kelliher said with a laugh.<\/p>\n<p><a href=\"https:\/\/www.statnews.com\/2025\/12\/30\/erythropoietic-protoporphyria-treatment-bitopertin\/?utm_campaign=rss\">Continue to STAT+ to read the full story\u2026<\/a><\/p>\n<\/div>\n<p> \t<BR><br \/>\n <BR><\/BR><br \/>\n    Marin Wolf \u2014 Boston Globe<br \/>\n \t<BR><br \/>\n<BR><\/BR><br \/>\n<a href=\"https:\/\/www.statnews.com\/2025\/12\/30\/erythropoietic-protoporphyria-treatment-bitopertin\/?utm_campaign=rss\">Go to statnews<\/a><br \/>\n \t<BR><br \/>\n <BR><\/BR><\/p>\n","protected":false},"excerpt":{"rendered":"<p>STAT+: A new drug allowed them to go in the sun for the first time. They\u2019re terrified they may have to give it up It was particularly cold and windy for a November day, but that didn\u2019t matter to Ginger Gonsalves and Becky Kelliher. The sun was out, and no one counted the seconds in [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1428,2678,2152],"tags":[2150],"class_list":["post-9425","post","type-post","status-publish","format-standard","hentry","category-health","category-rare-diseases","category-stat","tag-statnews"],"_links":{"self":[{"href":"https:\/\/mailitics.com\/index.php\/wp-json\/wp\/v2\/posts\/9425"}],"collection":[{"href":"https:\/\/mailitics.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/mailitics.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/mailitics.com\/index.php\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/mailitics.com\/index.php\/wp-json\/wp\/v2\/comments?post=9425"}],"version-history":[{"count":0,"href":"https:\/\/mailitics.com\/index.php\/wp-json\/wp\/v2\/posts\/9425\/revisions"}],"wp:attachment":[{"href":"https:\/\/mailitics.com\/index.php\/wp-json\/wp\/v2\/media?parent=9425"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/mailitics.com\/index.php\/wp-json\/wp\/v2\/categories?post=9425"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/mailitics.com\/index.php\/wp-json\/wp\/v2\/tags?post=9425"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}